Author Topic: prayer for daughter's struggle  (Read 1896 times)

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Offline calligraphqueen

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prayer for daughter's struggle
« on: July 27, 2006, 01:19:13 PM »
In the ongoing scheme of things, this is but another step.  My daughter is scheduled for another pre op visit on August 11th-when I am scheduled to be in DC.  She then has an MRI scheduled for the 15th of Aug.  Her developmental pediatrician is very pushy and wants us to drive to UVA for genetic counseling.  We had already decided that our Heather's needs were such that we weren't going to have any more children-so this is moot.  Plus dh's company is UK owned and has a no genetic policy within the insurance.  We will probably go under financially just from the scan and follow up with a pediatric neurologist, as we haven't even paid off her apnea study and resulting adenotonsillectomy.  Most specialists for pediatrics are located about 100 miles from us in Charlottesville, so it's logistical nightmare.
Pray for us, this is not what any parent expects for their child-and I have 6 others to care for and educate.  Pray for that miracle we have been begging God for, that he return Heather to us again, whole.

Rebecca

Offline Fr. George

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Re: prayer for daughter's struggle
« Reply #1 on: July 27, 2006, 01:32:38 PM »
Lord, have mercy.
How in Mor's good name
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Selam

Offline jlerms

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Re: prayer for daughter's struggle
« Reply #2 on: July 27, 2006, 03:28:07 PM »
Rebecca, 
My heart goes out to you and your family!  I pray that your Heather will be restored to full health.  If I may ask, what are her special needs?  Has there been a diagnosis?  I can't imagine the difficulty of raising seven children...people think I have too many children (3) and somehow I feel like a freak.  Maybe I am overly sensitive about the subject but here in Austin (which is filled to the brim with college graduates w/ masters & phds) view any family with more than 2 kids as either provencial, fundamentalist or old world RC. 

God bless you,     Juliana :)

Offline Dismus

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Re: prayer for daughter's struggle
« Reply #3 on: July 27, 2006, 04:24:59 PM »
Many Prayers, many prayers for you and your little blessing..
As an aside, have you consulted with the hospital staff about your finances?
I don't know about your hospital, but the ones close to me have assistance available for situations like yours.
Is it possible that your parish can mention your needs in their bulletin?
Ours does fundraisers for special situations for members in need.
I hope you are able to get the help you need from family and friends to help with the appointments and such. If I lived by you I would help, but I am in the Chicago area.
I will put your daughter Heather's name in the prayer list at our parish.
So sorry, it breaks my heart to read your story.
Love and prayers.

Offline calligraphqueen

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Re: prayer for daughter's struggle
« Reply #4 on: July 27, 2006, 09:39:05 PM »
Thank you for the prayers folks.ÂÂ  
My Heather was normal until about 18 mo, she had a fever though that wasn't off the charts either.ÂÂ  She started whispering all her words, then she stopped talking all together.ÂÂ  It was also the time we started researching Orthodoxy, and I felt severe spiritual struggle going on.
I remember Heather screaming and grabbing at her head before, but now it's become more regular.  the only specialist we have has dumped her in the "autistic spectrum"  ÃƒÆ’‚ A relatively bland, broad dumping ground for kids they have no idea what to do with.  She supposedly has pervasive developmental delay, and it's pretty severe.  She is stuck in most regards in the 9-12 month range now, and she will be 4 next month.  It doesn't neatly fit into any diagnosis though.  She cannot talk, cannot use her left side for most things and as a result didn't walk without holding on till after age 2. Her sisters, one of which is in my avatar can all do more than Heather.  They try to take care of her, but how much can a 1 and 2 yo really do?  It's very sweet to watch though, and they will grow up being more sensitive to those in need.
Truth be told, I am so tired of dealing with this.  we don't qualify for medical assistance or disability as dh makes a respectable wage.  They don't take into account that it's spread over 7 kids though.  the lady at Disability told me to have one more child and we would make the cut!  ÃƒÆ’‚ ???
The hospital just allows you to break into payments THEY set.ÂÂ  they aren't really friendly folk.ÂÂ  And our parish is very tiny and old, so there is no bulletin for people's needs.ÂÂ  They did have two different priests pray over Heather though!
Rebecca
« Last Edit: July 27, 2006, 09:42:02 PM by calligraphqueen »

Offline Dismus

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Re: prayer for daughter's struggle
« Reply #5 on: July 28, 2006, 01:37:17 AM »
Heather is in my thoughts and prayers. I was going to bed and I thought I would check in so to speak-
So sorry about all my suggestions that don't do any good..
I will continue to pray, and think of anything that might be helpful, I understand that you are in a painful place, but I can't say I know how it feels and what to do or where you should turn now... I am so sorry this is something that your little one has to be going through, and your family.
Please, for whatever it is worth, make sure you take care of yourself too.
You mentioned that you are getting tiered...
Yes! Of course you are!
Mary, mother of God, pray for us.
I will wake up early tomorrow (early for me is 6:00 am..)
and pray the Rosary for you. I will pray another prayer for Heather.
One from my heart.
Good night,
May you hold on, persevere!


Offline ozgeorge

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Re: prayer for daughter's struggle
« Reply #6 on: July 28, 2006, 10:30:39 AM »
"Turn not away Thy Face from Thy child, for I am afflicted! Hear me speedily; draw near to my soul and deliver me!"

God give you courage and hear your prayers Rebecca. I come from a country with free medical care, so it breaks my heart to hear of your financial struggle. It shocks me that a nation as rich as yours has a "user pays" approach to the health care of its citizens- especially its most vulnerable little citizens.
Today is the Feast of St. Irene Chrysovalantou- may she interceed for you all and obtain Heather's healing. See if you can get some oil and blessed apple from her monastery in Astoria NY.

In my prayers,
George
« Last Edit: July 28, 2006, 10:44:29 AM by ozgeorge »
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Offline jlerms

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Re: prayer for daughter's struggle
« Reply #7 on: July 28, 2006, 10:58:42 PM »
Hello Rebecca, 
 I was checking back to see how you are holding up.  After reading your reply I was struck by your story.  One of my brothers (there are 6 siblings in my family) had major developmental problems when he was infant through to 5 years old.  My mother took him to very many doctors who all came up with the same diagnosis....autism.  Actually a couple of them pronounced him mentally retarded.  Some of his symptoms were similar to Heather.  He could not speak or focus on anyone.  He would scream in sudden bursts and would mostly stay by the sliding glass door staring out into the back yard.  Anyway, my mother refused to believe the doctors and was relentless in searching out help for him.  She finally ended up taking him to a speech and hearing center where they had Tim participate in several tests...all of which he failed except one...paperfolding (origami)!  For some reason he was able to create several figures.  To make a long story short he was enrolled in the school there where he suddenly made rapid progress.  He was reading by the end of the year and doing arithmetic.  By the third grade he was doing algebra and by fifth he was already doing calculus!  He now is married with a child (who unfortunately has been diagnosed autistic) but Tim is now a successful mathmetician and programmer....so his 5 yr. old son may end up following in his footsteps.
 My point is that if your instincts are that the doctors are wrong keep searching for another opinion.  My mother said she sometimes felt guilty that she spent so much time on Tim and not so much with the rest of us; but she was being a good mother.  You obviously are a good mother too and love your children very much.  Please do not give up hope.  I feel sad about your financial struggle and am trying to think up a way that there could be a fundraising for Heather.  Sometimes a family is aided through the local news...but you would have to be willing to share your situation with the public and this may be distasteful to you.  Maybe we would be allowed to get a collection going through OC.net but I will have to ask one of the administrators.  In the meantime I will say a nightly prayer for your family and little Heather.   God bless you,   Juliana

Offline Starlight

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Re: prayer for daughter's struggle
« Reply #8 on: July 29, 2006, 12:41:58 AM »
Lord, have mercy.

Offline FrChris

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Re: prayer for daughter's struggle
« Reply #9 on: July 29, 2006, 07:14:01 AM »
Lord have mercy on His servants!
"As the sparrow flees from a hawk, so the man seeking humility flees from an argument". St John Climacus