Author Topic: An update on Taz, and prayer request  (Read 1505 times)

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Offline Quinault

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An update on Taz, and prayer request
« on: July 22, 2014, 04:25:18 AM »
Taz is 2.5 and has broken the 25 lb barrier thanks to 1500 cal of a hypoallergenic formula a day.

He still has dysphagia, and we have zero clue why he aspirates fluids. All his fluids have to be thickened to honey consistency, and the flow has to be restricted to what a 4 month old could tolerate. The surgical attempt to fix it in February of this year didn't do the trick. He has failed 3 swallow studies since the surgery. He had a sleep study last week. We don't have the results yet, but they said that they had enough data from 4 hours of sleep. We are being referred to a special aerogastric section of the hospital. We hope to get the referral and get in ASAP.

Prayers for answers would be appreciated. Taz really wants to drink water. Very soon his baby brother will be drinking water from an open cup, and Taz won't be allowed to do so. That will be a very sad and frustrating milestone for the Taz-man.

Offline Quinault

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Re: An update on Taz, and prayer request
« Reply #1 on: July 22, 2014, 04:27:52 AM »
(If anyone wants to catch up on the saga that is Taz, you can search for Taz or Tazzy)

Offline biro

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Re: An update on Taz, and prayer request
« Reply #2 on: July 22, 2014, 05:36:09 AM »
Lord have mercy.

St. Pantaleimon, pray for us.

Offline LizaSymonenko

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Re: An update on Taz, and prayer request
« Reply #3 on: July 22, 2014, 07:54:46 AM »

May God grant healing to Taz, restore his little body to function as it should, and grant strength to his family.

Lord, have mercy!
Conquer evil men by your gentle kindness, and make zealous men wonder at your goodness. Put the lover of legality to shame by your compassion. With the afflicted be afflicted in mind. Love all men, but keep distant from all men.
—St. Isaac of Syria

Offline SolEX01

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Re: An update on Taz, and prayer request
« Reply #4 on: July 22, 2014, 03:02:23 PM »
Lord have mercy on Taz and his family.

Offline Salpy

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Re: An update on Taz, and prayer request
« Reply #5 on: July 22, 2014, 03:39:02 PM »
Lord have mercy on Taz!

Online marigold

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Re: An update on Taz, and prayer request
« Reply #6 on: July 22, 2014, 07:13:36 PM »
Lord, have mercy on Your child, Taz.

Offline Maria

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Re: An update on Taz, and prayer request
« Reply #7 on: July 22, 2014, 07:44:14 PM »
Lord have mercy.   :'(
The memory of God should be treasured in our hearts like the precious pearl mentioned in the Holy Gospel. Our life's goal should be to nurture and contemplate God always within, and never let it depart, for this steadfastness will drive demons away from us. - Paraphrased from St. Philotheus of Sinai
Writings from the Philokalia: On Prayer of the Heart,
Translated from the Russian by E. Kadloubovksy and G.E.H. Palmer, Faber and Faber, London, Boston, 1992 printing.

Offline littlepilgrim64

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Re: An update on Taz, and prayer request
« Reply #8 on: July 22, 2014, 09:10:43 PM »
Have mercy, dear Lord!

Offline vamrat

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Re: An update on Taz, and prayer request
« Reply #9 on: July 22, 2014, 09:20:09 PM »
I am really sorry to hear this Quinalt, and hope that God gives you some comfort.  Know that I am praying for your family.
Das ist des Jägers Ehrenschild, daß er beschützt und hegt sein Wild, weidmännisch jagt, wie sich’s gehört, den Schöpfer im Geschöpfe ehrt.

Offline Maximum Bob

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Re: An update on Taz, and prayer request
« Reply #10 on: July 22, 2014, 11:54:29 PM »
Lord, have mercy on your child Taz.
Psalm 37:23 The Lord guides a man safely in the way he should go.

Prov. 3: 5-6 Trust in the Lord with all your heart, lean not on your own understanding; in all your ways acknowledge Him, and He will direct your paths.

Offline hecma925

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Re: An update on Taz, and prayer request
« Reply #11 on: July 23, 2014, 01:44:23 AM »
Lord, have mercy.
Happy shall he be, that shall take and dash thy little ones against the rock. Alleluia.

Once Christ has filled the Cross, it can never be empty again.

"But God doesn't need your cookies!  Arrive on time!"

Offline Maria

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Re: An update on Taz, and prayer request
« Reply #12 on: July 25, 2014, 04:34:42 PM »
Any updates.

My prayers.

Most Holy Theotokos, save us.
The memory of God should be treasured in our hearts like the precious pearl mentioned in the Holy Gospel. Our life's goal should be to nurture and contemplate God always within, and never let it depart, for this steadfastness will drive demons away from us. - Paraphrased from St. Philotheus of Sinai
Writings from the Philokalia: On Prayer of the Heart,
Translated from the Russian by E. Kadloubovksy and G.E.H. Palmer, Faber and Faber, London, Boston, 1992 printing.

Offline Quinault

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Re: An update on Taz, and prayer request
« Reply #13 on: July 25, 2014, 05:25:14 PM »
No, no updates at the moment. I still haven't heard anything from anyone. But here is a shot of Taz with his "little" brother Nash.


Nash is the chubbier one in the dinosaur jammies, Taz is wearing blue. He's fighting some sort of cold or something, that is why his eyes are all zoned out. Our eldest son Ollie is in the upper corner.
« Last Edit: July 25, 2014, 05:41:40 PM by Quinault »

Offline Maria

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Re: An update on Taz, and prayer request
« Reply #14 on: July 25, 2014, 05:28:43 PM »
Thanks for posting the picture. Lord have mercy.   :'(

They are both cute. I am praying for you and your entire family.

« Last Edit: July 25, 2014, 05:30:29 PM by Maria »
The memory of God should be treasured in our hearts like the precious pearl mentioned in the Holy Gospel. Our life's goal should be to nurture and contemplate God always within, and never let it depart, for this steadfastness will drive demons away from us. - Paraphrased from St. Philotheus of Sinai
Writings from the Philokalia: On Prayer of the Heart,
Translated from the Russian by E. Kadloubovksy and G.E.H. Palmer, Faber and Faber, London, Boston, 1992 printing.

Offline LizaSymonenko

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Re: An update on Taz, and prayer request
« Reply #15 on: July 25, 2014, 05:52:36 PM »

Awww!  They are both so cute!  Taz has a booboo on his forehead.  :(

May God grant all of your children and their parents good health and prosperity!
Conquer evil men by your gentle kindness, and make zealous men wonder at your goodness. Put the lover of legality to shame by your compassion. With the afflicted be afflicted in mind. Love all men, but keep distant from all men.
—St. Isaac of Syria

Offline Quinault

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Re: An update on Taz, and prayer request
« Reply #16 on: July 25, 2014, 06:07:10 PM »
He took a nosedive off the bed, and he hates scabs. So it looks scarier than it is.

Thanks for the prayers. I really appreciate it. Raising Taz has broken and reset my spirit in ways that I can't even begin to describe.

Offline Maria

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Re: An update on Taz, and prayer request
« Reply #17 on: July 25, 2014, 06:10:49 PM »
He took a nosedive off the bed, and he hates scabs. So it looks scarier than it is.

Thanks for the prayers. I really appreciate it. Raising Taz has broken and reset my spirit in ways that I can't even begin to describe.

Lord have mercy. Boys will be boys. I don't think that any boy likes scabs.

Anyway, I will continue to pray for you and your awesome family that the Lord will heal  them.
The memory of God should be treasured in our hearts like the precious pearl mentioned in the Holy Gospel. Our life's goal should be to nurture and contemplate God always within, and never let it depart, for this steadfastness will drive demons away from us. - Paraphrased from St. Philotheus of Sinai
Writings from the Philokalia: On Prayer of the Heart,
Translated from the Russian by E. Kadloubovksy and G.E.H. Palmer, Faber and Faber, London, Boston, 1992 printing.

Offline Maximum Bob

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Re: An update on Taz, and prayer request
« Reply #18 on: July 25, 2014, 07:15:26 PM »
Very cute.  Continuing to pray.  Lord, have mercy.
Psalm 37:23 The Lord guides a man safely in the way he should go.

Prov. 3: 5-6 Trust in the Lord with all your heart, lean not on your own understanding; in all your ways acknowledge Him, and He will direct your paths.

Offline littlepilgrim64

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Re: An update on Taz, and prayer request
« Reply #19 on: July 26, 2014, 07:22:32 AM »
Your boys are adorable!  You are blessed  :)

Offline biro

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Re: An update on Taz, and prayer request
« Reply #20 on: July 26, 2014, 07:55:56 AM »
Your boys are adorable!  You are blessed  :)

This times a zillion.  :angel:

Offline chrisgeo

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Re: An update on Taz, and prayer request
« Reply #21 on: July 29, 2014, 01:18:20 AM »
Lord Have Mercy on little Taz

Offline Papist

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Re: An update on Taz, and prayer request
« Reply #22 on: July 29, 2014, 03:05:01 PM »
Lord, have mercy.
"For, by its immensity, the divine substance surpasses every form that our intellect reaches. Thus we are unable to apprehend it by knowing what it is. Yet we are able to have some knowledge of it by knowing what it is not." - St. Thomas Aquinas, Summa contra gentiles, I, 14.

Offline quietmorning

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Re: An update on Taz, and prayer request
« Reply #23 on: August 02, 2014, 12:21:46 AM »
Lord have mercy on Taz!
In His Mercy,
BethAnna