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Author Topic: An update on Taz, and prayer request  (Read 605 times) Average Rating: 0
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Quinault
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What about frogs? I like frogs!


« on: July 22, 2014, 04:25:18 AM »

Taz is 2.5 and has broken the 25 lb barrier thanks to 1500 cal of a hypoallergenic formula a day.

He still has dysphagia, and we have zero clue why he aspirates fluids. All his fluids have to be thickened to honey consistency, and the flow has to be restricted to what a 4 month old could tolerate. The surgical attempt to fix it in February of this year didn't do the trick. He has failed 3 swallow studies since the surgery. He had a sleep study last week. We don't have the results yet, but they said that they had enough data from 4 hours of sleep. We are being referred to a special aerogastric section of the hospital. We hope to get the referral and get in ASAP.

Prayers for answers would be appreciated. Taz really wants to drink water. Very soon his baby brother will be drinking water from an open cup, and Taz won't be allowed to do so. That will be a very sad and frustrating milestone for the Taz-man.
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Quinault
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What about frogs? I like frogs!


« Reply #1 on: July 22, 2014, 04:27:52 AM »

(If anyone wants to catch up on the saga that is Taz, you can search for Taz or Tazzy)
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biro
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« Reply #2 on: July 22, 2014, 05:36:09 AM »

Lord have mercy.

St. Pantaleimon, pray for us.
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« Reply #3 on: July 22, 2014, 07:54:46 AM »


May God grant healing to Taz, restore his little body to function as it should, and grant strength to his family.

Lord, have mercy!
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« Reply #4 on: July 22, 2014, 03:02:23 PM »

Lord have mercy on Taz and his family.
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« Reply #5 on: July 22, 2014, 03:39:02 PM »

Lord have mercy on Taz!
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« Reply #6 on: July 22, 2014, 07:13:36 PM »

Lord, have mercy on Your child, Taz.
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Maria
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« Reply #7 on: July 22, 2014, 07:44:14 PM »

Lord have mercy.   Cry
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« Reply #8 on: July 22, 2014, 09:10:43 PM »

Have mercy, dear Lord!
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« Reply #9 on: July 22, 2014, 09:20:09 PM »

I am really sorry to hear this Quinalt, and hope that God gives you some comfort.  Know that I am praying for your family.
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« Reply #10 on: July 22, 2014, 11:54:29 PM »

Lord, have mercy on your child Taz.
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« Reply #11 on: July 23, 2014, 01:44:23 AM »

Lord, have mercy.
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« Reply #12 on: July 25, 2014, 04:34:42 PM »

Any updates.

My prayers.

Most Holy Theotokos, save us.
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What about frogs? I like frogs!


« Reply #13 on: July 25, 2014, 05:25:14 PM »

No, no updates at the moment. I still haven't heard anything from anyone. But here is a shot of Taz with his "little" brother Nash.


Nash is the chubbier one in the dinosaur jammies, Taz is wearing blue. He's fighting some sort of cold or something, that is why his eyes are all zoned out. Our eldest son Ollie is in the upper corner.
« Last Edit: July 25, 2014, 05:41:40 PM by Quinault » Logged
Maria
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« Reply #14 on: July 25, 2014, 05:28:43 PM »

Thanks for posting the picture. Lord have mercy.   Cry

They are both cute. I am praying for you and your entire family.

« Last Edit: July 25, 2014, 05:30:29 PM by Maria » Logged

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« Reply #15 on: July 25, 2014, 05:52:36 PM »


Awww!  They are both so cute!  Taz has a booboo on his forehead.  Sad

May God grant all of your children and their parents good health and prosperity!
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Conquer evil men by your gentle kindness, and make zealous men wonder at your goodness. Put the lover of legality to shame by your compassion. With the afflicted be afflicted in mind. Love all men, but keep distant from all men.
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Quinault
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What about frogs? I like frogs!


« Reply #16 on: July 25, 2014, 06:07:10 PM »

He took a nosedive off the bed, and he hates scabs. So it looks scarier than it is.

Thanks for the prayers. I really appreciate it. Raising Taz has broken and reset my spirit in ways that I can't even begin to describe.
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Maria
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O most Holy Theotokos, save us.


« Reply #17 on: July 25, 2014, 06:10:49 PM »

He took a nosedive off the bed, and he hates scabs. So it looks scarier than it is.

Thanks for the prayers. I really appreciate it. Raising Taz has broken and reset my spirit in ways that I can't even begin to describe.

Lord have mercy. Boys will be boys. I don't think that any boy likes scabs.

Anyway, I will continue to pray for you and your awesome family that the Lord will heal  them.
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« Reply #18 on: July 25, 2014, 07:15:26 PM »

Very cute.  Continuing to pray.  Lord, have mercy.
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littlepilgrim64
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Son of God, have mercy on me a sinner.


« Reply #19 on: July 26, 2014, 07:22:32 AM »

Your boys are adorable!  You are blessed  Smiley
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biro
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« Reply #20 on: July 26, 2014, 07:55:56 AM »

Your boys are adorable!  You are blessed  Smiley

This times a zillion.  angel
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« Reply #21 on: July 29, 2014, 01:18:20 AM »

Lord Have Mercy on little Taz
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« Reply #22 on: July 29, 2014, 03:05:01 PM »

Lord, have mercy.
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« Reply #23 on: August 02, 2014, 12:21:46 AM »

Lord have mercy on Taz!
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In His Mercy,
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