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Author Topic: My Ari  (Read 807 times) Average Rating: 0
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Quinault
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« on: January 27, 2011, 04:27:44 AM »

Our youngest daughter has an unusual birthmark. This could be just a strange birthmark, or it could indicate that she has neurofibromatosis or a similar neurological disorder. I am taking her to see a dermatologist to have this checked out tomorrow. I would appreciate prayers that the doctors will have wisdom and that we will know what is going on.

To those that are curious; she has a cafe au lait spot at the midline directly about the pubic bone. It stops abruptly at the midline and doesn't overlap onto the otherside. She has darker pigmentation in the inner thighs as well. I have the latter type of pigmentationas well and don't have any neurological conditions, so hopefully this birthmark is not an indicator of anything serious.
« Last Edit: January 27, 2011, 04:30:32 AM by Quinault » Logged
NicholasMyra
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« Reply #1 on: January 27, 2011, 04:33:08 AM »

Lord, have mercy.
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Maria
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« Reply #2 on: January 27, 2011, 04:35:56 AM »

O Lord Jesus Christ, Son of God, have mercy on your handmaiden, Ari, and grant her health and salvation.
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« Reply #3 on: January 27, 2011, 04:39:00 AM »

Lord, have mercy!
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Phoenix73
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« Reply #4 on: January 27, 2011, 08:15:23 AM »

Lord Have Mercy
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« Reply #5 on: January 27, 2011, 01:14:23 PM »

Prayers........

Lord Have Mercy.......Amen Amen

Prayers to our Lord and Saviour ,that the diagnosis for Ari is negative.....Amen Amen
Prayers to the Most Holy Mother of God , for her help in this situation....Amen Amen
Prayers to  Ari's Guardian Angel ,for protection, intersession and help.....Amen Amen
                         Slava i Hvala ti Gospode....Amen Amen

« Last Edit: January 27, 2011, 01:22:58 PM by stashko » Logged

ГОСПОДЕ ГОСПОДЕ ,ПОГЛЕДАЈ СА НЕБА ,ДОЂИ И ПОСЕТИ ТВОЈ ВИНОГРАД ТВОЈА ДЕСНИЦА ПОСАДИЛА АМИН АМИН.
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« Reply #6 on: January 27, 2011, 01:34:32 PM »


Lord, have mercy!
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« Reply #7 on: January 27, 2011, 04:11:04 PM »

I am back from the appt. She has a few "soft" signs of neurofibromatosis or possibly another disorder. One of those soft signs is the darker inner thigh pigmentation that I also have, and I don't have neurofibromatosis (that we are aware of). The other soft sign is that she has a large-ish head. That isn't too big a concern since all 4 of our kids have large-ish heads at this age. Our son has a massive head, his nickname is Charlie Brown Head. And obviously the strange chimera like cafe au lait spot is a concern. So we just have to watch and wait. There is reason to hope that she is just fine. But we will have a follow-up in 18 months to see if anything has changed and warrants concern. I suppose I could have genetic testing to see if I have neurofibromatosis, but that wouldn't entirely eliminate the possibility that she has/doesn't have the condition no matter the outcome of the test.

I wish my mom recalled more about me as a baby and that I was in contact with my father's family. I believe that this darker pigmentation is common in that side of the family. American indian skin pigmentation hasn't been studied extensively, especially since it can vary so widely in different areas of the country. I may have had the same darker area on my belly as a child. But I had a massive 3rd degree burn across my midsection when I was about 4-5 years old, so if it was there it isn't there anymore. I didn't have any medical care for the burn, so I don't have any records of how my skin was at that time.
« Last Edit: January 27, 2011, 04:30:33 PM by Quinault » Logged
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« Reply #8 on: January 27, 2011, 05:08:58 PM »

Lord, have mercy.
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Maria
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« Reply #9 on: January 27, 2011, 05:09:47 PM »

Lord have mercy.
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« Reply #10 on: January 27, 2011, 08:57:32 PM »

Lord, have mercy!
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« Reply #11 on: January 27, 2011, 08:59:47 PM »

"Lord have mercy."


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« Reply #12 on: January 27, 2011, 09:57:58 PM »

Lord, have mercy! Lord, have mercy! Lord, have mercy!

Through the intercessions of the Most Holy Theotokos, and all the Saints, may God have mercy upon your servant!
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« Reply #13 on: January 27, 2011, 10:13:10 PM »

Lord, have mercy.
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« Reply #14 on: January 28, 2011, 12:18:52 AM »

Lord have mercy.
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In His Mercy,
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« Reply #15 on: January 28, 2011, 12:36:50 AM »

Lord have Mercy.
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