First, let me say how grateful our family is for all of the prayers, encouragement, and support from so many of you on this forum. We have felt your prayers, and we know that God is hearing and answering them.
We received Hosanna's test results on Friday. She has Trisomy 18, which is also known as Edwards Syndrome. The statistics are discouraging: newborns have a 40% chance of surviving to age 1 month; infants have a 5% chance of surviving to age 1 year; and there is a 1% chance of surviving to age ten. But there have been rare instances where people with Trisomy 18 have lived to be 27 years old.
It seems that Hosanna will have severe mental retardation, and we already know that she has a congenital heart defect. There are also many other potential problems that can accompany Trisomy 18.
That being said, we know that God is bigger than statistics. Little Hosanna Maryam is a beautiful little baby with the sweetest disposition. She has such a soft little cry, and is not fussy at all. She sleeps, stretches, yawns, and cries a little when she is hungry. My wife has been able to successfully breast feed her, but Hosanna usually drinks breast milk from a bottle because she burns too many calories if she breast feeds every time. Her weight has been fluctuating between about 4 pounds 2 ounces and 4 pounds.
We are going to love Hosanna and care for her the best we can, trusting God one day at a time. The hardest thing to deal with is all the uncertainty and the unknowns. But she is a blessing from God, and I can tell that she is surrounded by angels. I know that she is already God's servant, bringing glory to Him and reminding us of the beauty, fragility, and sanctity of human life.
Again, please know how much we appreciate all your prayers and kind words of wisdom and support. I will keep you updated on little Hosanna's progress and development.
Gebre Menfes Kidus