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Author Topic: Please Pray for Baby Mariyam  (Read 4541 times) Average Rating: 0
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Gebre Menfes Kidus
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« on: July 13, 2010, 03:43:05 AM »

The doctor thinks baby Mariyam, our unborn child, probably has a chromosome abnormality. Due to a number of factors - lack of substantive growth, she won't unclench her fists, she may have a possible hole in her heart valve, heart arrhythmia (which is fine now), and a cyst (that has now gone away) - the doctor told us that there is an 80% chance that our baby has "Tresimy 21" (commonly known as Down's Syndrome) or "Tresimy 18." An amniocentesis will tell us for sure whether or not baby Mariyam has this chromosome abnormality. But there are some risks involved with an amniocentisis, and if there is a chromosome abnormality there is no treatment for it. I really don't think we'll have an amniocentesis.

We know baby Mariyam has been sent to us by God. We know that she will serve whatever purpose that God has for her. We are committed to doing everything within our power to protect and nurture her life for as long as possible. The rest is in God's hands. But personally, I truly believe that baby Mariyam will be born just as healthy as our other three children.

Your prayers are much appreciated.

Thank you.


Selam
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« Reply #1 on: July 13, 2010, 03:58:23 AM »

Don't worry too much please. She sounds like she is actually pretty healthy for a baby that possibly has downs syndrome or trisomy 18. I have been in situations where we were urged to have an amnio before. I have always declined to have the amnio and just prayed that God would be with our child and us. An amnio is only really useful in regard to downs if you would choose to abort (which I know you would not). I normally consent to the integrated quad screen (this is a blood test in the late 1st trimester that is used in conjunction with an additional blood screening in the second trimester. The false positive rate of this set of tests is much lower then nuchal fold testing and a single quad screen).

That said, some of the sweetest children I have ever met have had downs syndrome. I truly believe that those children have a view of the world that is pure and are themselves some of the most pure hearted people to live. These children are no less a blessing then any other child.

God be with you and yours, and may you all be granted unexplainable peace.

There is a protestant Christian couple that dealt with having a child that had trisomy 18, he is in the Christian group Selah. The mother Angie wrote a book called "I will carry you" about the experience of carrying their daughter. It is fairly heartwrenching to read, but it is also quite uplifting as well.
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« Reply #2 on: July 13, 2010, 04:00:21 AM »

Lord Almight of mercy and grace,

Look upon your servant and grant him your aid. Turn his sorrow and anxiety into joy and peace. In Christ's name. Amen.
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« Reply #3 on: July 13, 2010, 08:23:13 AM »


Lord, bless little Mariyam.  Grant her good health so she may grow to do the will of God for the glory of her parents and the Lord!
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« Reply #4 on: July 13, 2010, 08:56:50 AM »

Lord, have mercy!
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« Reply #5 on: July 13, 2010, 09:00:47 AM »

Lord, protect this baby Mariyam so that she will be safe.

Cause your right hand to descend upon her entire family, giving them strength and assurance that all things work to their salvation.
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« Reply #6 on: July 13, 2010, 10:03:50 AM »

Praying for the safety and health of Mariyam! May all be well and may she be a healthy, happy baby!
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« Reply #7 on: July 13, 2010, 10:15:48 AM »

Lord, have mercy.
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« Reply #8 on: July 13, 2010, 10:38:56 AM »

May God preserve and protect you and your family.
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« Reply #9 on: July 13, 2010, 10:46:06 AM »

Lord have mercy!

My sister had a child with undeveloped lungs and practically no internal organs. All the testing didnt' pick up on that. Conversely, I've known embryos who "failed" tests but came out pefectly fine.  Doctors do not know everything.
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« Reply #10 on: July 13, 2010, 11:58:59 AM »

Lord, have mercy!
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« Reply #11 on: July 13, 2010, 01:46:02 PM »

Lord, have mercy.
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« Reply #12 on: July 13, 2010, 02:39:29 PM »

Lord, have mercy!
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« Reply #13 on: July 13, 2010, 04:00:38 PM »

An amniocentesis might be useful to confirm any chromosomal anomalies; it would give you time to research and prepare to live with your baby's condition.  But I understand if you feel the risk is too great.
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« Reply #14 on: July 13, 2010, 04:33:53 PM »

Your family is in our prayers.
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« Reply #15 on: July 13, 2010, 04:37:34 PM »

Lord have mercy.

God bless you.  Your faith in God's mercy encourages me a great deal.

My wife and I will pray for your child and for your family.

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« Reply #16 on: July 13, 2010, 04:56:36 PM »

Lord have Mercy.
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« Reply #17 on: July 14, 2010, 02:01:58 AM »

Thank you so much, everyone, for your heartfelt prayers and sincere words of encouragement! I will definitely keep you apprised of our situation.


Selam
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« Reply #18 on: July 14, 2010, 02:08:52 AM »

Lord have mercy.
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« Reply #19 on: July 14, 2010, 10:53:27 AM »

Lord, have mercy!
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« Reply #20 on: July 14, 2010, 08:07:45 PM »

Lord, have mercy on little Mariyam!
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« Reply #21 on: July 15, 2010, 01:10:20 AM »

Molitve / Prayers / Молитве.....

Господе Помилуј......Амин Амин
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Gospode Pomiluj.....Amin Amin


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« Reply #22 on: July 15, 2010, 11:38:15 AM »

Lord, have mercy!
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« Reply #23 on: July 19, 2010, 06:19:22 PM »

Lord, have mercy!
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« Reply #24 on: July 19, 2010, 07:15:58 PM »

Lord have mercy!
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« Reply #25 on: July 19, 2010, 10:21:09 PM »

Lord, have mercy.
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« Reply #26 on: July 20, 2010, 04:39:54 PM »

Lord have mercy!
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« Reply #27 on: July 20, 2010, 05:35:33 PM »

In the name of the Father, the Son, and the Holy Spirit, one God, Amen.

O holy Father, heavenly Physician of our souls and bodies, who hast sent thine Only-begotten Son our Lord Jesus Christ to heal all our ailments and deliver us from death: do thou visit and heal thy handmaiden Mariyam, granting her release from pain and restoration to health and vigor, that she may give thanks unto thee and bless thy holy Name, of the Father, and of the Son, and of the Holy Spirit: now and ever, and unto ages of ages. Amen.

May Our Loving God's mercy and the intercession of the Blessed Virgin be with your sweet daughter.

I'll be praying hard for your precious girl.
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« Reply #28 on: August 21, 2010, 10:06:52 PM »

Thank you SO MUCH everyone for all your prayers. We have really felt them!
 
Well, it looks like they are going to deliver baby Mariyam early, probably a week from Tuesday (August 30th). She just hasn't gained enough weight, and the doctors say she will be able to receive nourishment better outside of the womb. If my wife carries her to term, there is a strong risk of still-birth.

Baby Mariyam has a VSD (Ventricular Septum Defect), which is basically a hole in her heart valve if I understand correctly. The doctors say this might correct itself after she is born, but she might need surgery. They won't know until she is born. But her heartbeat is strong and steady, and her arrhythmia has completely cleared up. She also finally opened her hands one time, so that was encouraging.

It's crazy how fast all this is happening! I can't thank you all enough for your prayers and words of encouragement. Please keep praying! I'll update you in about a week. Smiley


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« Reply #29 on: August 21, 2010, 10:25:13 PM »

She opened her hands?  This sounds like encouraging news, brother!  Smiley

I have a small icon card of the Blessed Virgin that was touched to the myrrh-streaming Iveron icon, and I'm going to beg St. Mary's intercession for your little Mariyam tonight.  Your family will be in my families prayers tonight.  Keep your head up and keep us posted, brother.
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« Reply #30 on: August 21, 2010, 10:38:40 PM »

The hand movement is extremely promising!

A couple little pieces of advice from someone that has had a child in the NICU;

you need to make sure that your needs (both as a mom and dad) are attended to. This is still your child and your desires still matter a great deal.

IV's in the head are much easier to deal with then the ones in the feet/hand/belly button. You change diapers so often and move a child so much, the IV placement makes a big difference. Many nurses don't want to put an IV there because it looks scary, and it does look really scary. But it is much easier to have one good IV then to have multiple blown veins all over your poor baby. So if they give you an option of IV placement, go with the head.

She will likely be inoculated for RSV. This is a REALLY good thing to do. I would add additionally that a UVC wand is great for killing a lot of the nastiness that comes home. It is really easy to just go over everything every night this way without causing a build up of chemicals or getting resistant types growing. You can't use it on skin, but it is great for phones, door knobs, changing tables, counters- pretty much all the things that you would have to douse with Lysol every night if you have an immunocompromised baby. It isn't practical to wash a car seat, bouncy seat, chairs, swing etc. daily, this allows you to keep them "clean" inbetween washing them. I had one that I used thru this last year and I can't recommend it highly enough.


I am happy for you that you have a new blessing coming, and especially that you see her as the blessing she is rather then worrying about the troubles she could have. Take good care of yourself as well as your family. Men tend to try to be the hero in a situation sometimes. But that is merely delaying the reaction, making it worse.

I will be praying for your family. Your wife may find some solace in the Akathist to the Mother of God Nurturer of Children
http://www.serfes.org/orthodox/nuturerofchildren.htm

While I was pregnant I found these prayers on here;

First Prayer during Pregnancy

Master, Lord Jesus Christ our God, Source of life and immortality, we thank Thee, that Thou hast enabled us in wedlock to become partakers of Thy blessing and gift, for Thou hast said, O Master, "Grow and multiply and you will fill the earth." We thank Thee and pray: bless this fruit of our body which Thou hast granted us, show Thy mercy upon it and enliven it with Thy Holy Spirit. Make its body to grow in health and without flaw and grant it well-formed members. Sanctify its body, mind, heart and inward parts. Grant this infant wisdom and fear of Thee; appoint a faithful guardian Angel for his soul and body. Cover, protect, strengthen and preserve the child in our womb until the very hour when Thou didst command him to be born. But do not conceal him in his mother's womb, for Thy hands have prepared him. Thou gavest him life and breath. O Lord Jesus Christ, we entrust our child into Thine all-powerful hands. Place the right hand of Thy grace upon him, sanctify him with Thy Holy Spirit and renew him for eternal life, that he may be a partaker of Thy Kingdom. Amen.


Second Prayer during Pregnancy

O all-merciful Christ our God, look upon us and preserve us, Thy servants, from fear and evil spirits, which hope to destroy the work of Thy hands. And when our hour and time will come, grant us deliverance according to Thy grace. Look upon us in Thy mercy and free Thy servants from torment. Alleviate the hardships of our pregnancy and grant us the strength and fortitude to give birth and enable this with Thine all-powerful help. For this is Thy wondrous creation, the power of Thy omnipotence, the work of Thy grace and mercy. Amen.


Third Prayer during Pregnancy

Our most merciful Queen, our hope, O Mother of God, the joy of those who sorrow — help us who are weak, and pray to Thy Son, Christ our God, that He may lighten the time of our pregnancy and successfully resolve this difficult time of His unworthy servants, and that His blessing may be on the infant born of us. For we have no other help, no other hope, but only you, O Mother of God, that you may preserve and cover us and our child. For through your protection and help we are saved, and send up glory and thanksgiving for all to the One God in Trinity and the Creator of all, always, now and ever, and unto the ages of ages. Amen.
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« Reply #31 on: August 21, 2010, 11:02:03 PM »

I'm glad to hear that she has moved her hands! 

Lord have mercy on baby Mariyam!
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« Reply #32 on: August 21, 2010, 11:12:02 PM »

Lord, have mercy on baby Mariyam and her parents.
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« Reply #33 on: August 22, 2010, 12:18:08 AM »

Lord, have mercy. Please let us know what happens.

I am very forgetful, but I will try very hard to remember to light a candle tomorrow to St. Mariyam of Egypt, our parish's patron and protectress, for your little girl.
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« Reply #34 on: August 22, 2010, 01:02:08 AM »

Lord Jesus Christ have mercy on the child Mariyam. Grant that she may be born healthy and grow strong.

Besime Ab, WeWolde, WeMenfeQidus, Ahadu Amlak. Amin.
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« Reply #35 on: August 22, 2010, 10:58:19 AM »

God be with you, your wife and your baby. It is clear she is a fighter - I pray for your joyful meeting with your new daughter.

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« Reply #36 on: August 22, 2010, 01:56:08 PM »

I remembered the candle today. St. Mary pray to God for the little one!
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« Reply #37 on: August 22, 2010, 02:14:41 PM »

I remembered the candle today. St. Mary pray to God for the little one!


Thank you brother! Smiley  And thanks again to everyone else!


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« Reply #38 on: August 22, 2010, 02:39:46 PM »

Lord have mercy!
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« Reply #39 on: August 23, 2010, 06:06:52 AM »

Lord have mercy
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« Reply #40 on: August 23, 2010, 08:58:24 AM »

Lord, have mercy!
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« Reply #41 on: August 23, 2010, 09:19:18 AM »


Lord, have mercy!
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« Reply #42 on: August 23, 2010, 09:23:02 AM »

Lord, have mercy!
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« Reply #43 on: August 23, 2010, 10:10:18 AM »

Lord, have mercy!
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« Reply #44 on: August 29, 2010, 09:12:57 PM »

Mariyam is in my prayers as you await her arrival in the next couple days.
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« Reply #45 on: August 29, 2010, 09:26:41 PM »

Lord have mercy!
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« Reply #46 on: September 01, 2010, 11:00:24 PM »

Hosanna Maryam was born at 12:03 p.m. today! 4 pounds, 5 ounces. She is a beautiful gift from God! I am deeply grateful for everyone's prayers and encouragement. Please continue to lift little Hosanna up to God. She has a few hurdles to overcome right now, but we know she is divinely blessed. I will keep you apprised of her progress.

My wife is doing fine. She is my hero, and the bravest and most beautiful woman I know. I don't deserve these tremendous blessings. The mercy of God endureth forever.

(BTW, we changed our baby's name slightly after learning that in Ethiopian Orthodox tradition it is not repsectful to name a baby's first name after Our Lady the Virgin St. Mary. Our Priest said "Hosanna Maryam" was a good name, and that we can call her "Hosanna" or "Hosanna Maryam." We will most likely just call her "Hosanna.")

+++ PSALM 127:3-5 +++ 





Selam,

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« Reply #47 on: September 01, 2010, 11:12:14 PM »

Congratulations and many years to Hosanna and her family! What a sweet baby girl!
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« Reply #48 on: September 01, 2010, 11:13:57 PM »

Thank you for updating us! I have been thinking and praying about your guys most of the day. She is a beautiful girl! What a blessing!
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« Reply #49 on: September 01, 2010, 11:51:46 PM »

What a beautiful girl!  And I love the name Hosanna!
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« Reply #50 on: September 02, 2010, 02:13:23 AM »

Hosanna to the King of Israel.  Hosanna for the King of Israel.  Glory be to God forever.  Amen!

Congratulations!  Smiley
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« Reply #51 on: September 02, 2010, 04:32:37 AM »

Congratulations GMK!! God bless little Hosanna Maryam and your entire family. May the Holy Virgin see to it that baby Hosanna Maryam overcome those hurdles you refer to.
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« Reply #52 on: September 02, 2010, 07:02:10 AM »

Congratulations.  Smiley God Bless you all.
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« Reply #53 on: September 02, 2010, 08:57:40 AM »

Many Years! What a wonderful little treasure.Smiley
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« Reply #54 on: September 02, 2010, 09:19:22 AM »


Congratulations!  Many, many happy years to the entire family!

Look at all that great hair!

Wishing you all the best!  May God ease her through the hurdles she has to get over, and grant little Hosanna Mariyam and her family many years of health, joy, love and peace!

Lord, have mercy!

Many Years!

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« Reply #55 on: September 05, 2010, 05:47:02 PM »

Hosanna - what a beautiful name for a beautiful child!
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« Reply #56 on: September 05, 2010, 08:51:21 PM »

Thank you for sharing. May she be blessed beyond measure for your faithfulness.
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« Reply #57 on: September 06, 2010, 12:25:04 AM »

Glory to God!
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« Reply #58 on: September 06, 2010, 03:04:59 PM »

May God grant little Hosanna Maryam and her parents many years!
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« Reply #59 on: September 06, 2010, 07:47:43 PM »

Hosanna in the Highest! Congrats on your beautiful daughter! We are expecting a girl in January, please keep us in your prayers.
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« Reply #60 on: September 06, 2010, 11:38:03 PM »

Congratulations and Many Years to Hosanna Mariyam!!
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« Reply #61 on: September 10, 2010, 01:13:48 PM »

Hosanna Maryam was born at 12:03 p.m. today! 4 pounds, 5 ounces. She is a beautiful gift from God! I am deeply grateful for everyone's prayers and encouragement. Please continue to lift little Hosanna up to God. She has a few hurdles to overcome right now, but we know she is divinely blessed. I will keep you apprised of her progress.

My wife is doing fine. She is my hero, and the bravest and most beautiful woman I know. I don't deserve these tremendous blessings. The mercy of God endureth forever.

(BTW, we changed our baby's name slightly after learning that in Ethiopian Orthodox tradition it is not repsectful to name a baby's first name after Our Lady the Virgin St. Mary. Our Priest said "Hosanna Maryam" was a good name, and that we can call her "Hosanna" or "Hosanna Maryam." We will most likely just call her "Hosanna.")

+++ PSALM 127:3-5 +++ 





Selam,

Gebre Menfes Kidus

God bless this beautiful, perfect little girl and may Our Blessed Lady keep her hand over her eternally.  She's so wonderful, I'm almost in tears right now.  Congratulations, brother!  You must be beside yourself with joy right now.  Smiley
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« Reply #62 on: September 10, 2010, 04:04:59 PM »

Congratulations!   Grin  God bless.   angel
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« Reply #63 on: September 12, 2010, 12:06:00 AM »

First, let me say how grateful our family is for all of the prayers, encouragement, and support from so many of you on this forum. We have felt your prayers, and we know that God is hearing and answering them.

We received Hosanna's test results on Friday. She has Trisomy 18, which is also known as Edwards Syndrome. The statistics are discouraging: newborns have a 40% chance of surviving to age 1 month; infants have a 5% chance of surviving to age 1 year; and there is a 1% chance of surviving to age ten. But there have been rare instances where people with Trisomy 18 have lived to be 27 years old.

It seems that Hosanna will have severe mental retardation, and we already know that she has a congenital heart defect. There are also many other potential problems that can accompany Trisomy 18.

That being said, we know that God is bigger than statistics. Little Hosanna Maryam is a beautiful little baby with the sweetest disposition. She has such a soft little cry, and is not fussy at all. She sleeps, stretches, yawns, and cries a little when she is hungry. My wife has been able to successfully breast feed her, but Hosanna usually drinks breast milk from a bottle because she burns too many calories if she breast feeds every time. Her weight has been fluctuating between about 4 pounds 2 ounces and 4 pounds.

We are going to love Hosanna and care for her the best we can, trusting God one day at a time. The hardest thing to deal with is all the uncertainty and the unknowns. But she is a blessing from God, and I can tell that she is surrounded by angels. I know that she is already God's servant, bringing glory to Him and reminding us of the beauty, fragility, and sanctity of human life.

Again, please know how much we appreciate all your prayers and kind words of wisdom and support. I will keep you updated on little Hosanna's progress and development.


Selam,

Gebre Menfes Kidus
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« Reply #64 on: September 12, 2010, 12:35:01 AM »

Thank you so much for updating us. You will continue to be in my prayers.
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« Reply #65 on: September 13, 2010, 09:19:27 AM »

Congratulations, and many many years to your whole family!  She is beautiful!
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« Reply #66 on: September 13, 2010, 09:23:20 AM »

Inspiring, Gebre!

May your family always walk in the way prepared for y'all by the Lord!
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« Reply #67 on: September 13, 2010, 10:06:57 AM »

Lord, have mercy!

May God always watch over your littlest one.

She is so beautiful and happy...it's hard to believe she has any issues, at all.

God bless you and your entire family. 
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« Reply #68 on: September 13, 2010, 11:35:18 AM »

That being said, we know that God is bigger than statistics.

Amen.  Everytime I pray to the Blessed Virgin, I'll remember Hosanna.
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« Reply #69 on: September 16, 2010, 10:30:40 PM »

That being said, we know that God is bigger than statistics.

Amen.  Everytime I pray to the Blessed Virgin, I'll remember Hosanna.

As will I! Amen!
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« Reply #70 on: September 17, 2010, 01:44:06 AM »

Hosanna came home today! Smiley





Selam

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« Reply #71 on: September 17, 2010, 02:33:31 AM »

That is a beautiful picture Gebre!
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« Reply #72 on: September 17, 2010, 07:27:17 PM »

Lord, have mercy!  May God grant you the grace to endure and the blessings to love even in the midst of suffering.
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« Reply #73 on: September 17, 2010, 08:29:51 PM »

Very sweet picture! I wish you much strength and courage as you care for Hosanna.
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« Reply #74 on: September 17, 2010, 08:46:05 PM »

What a sweet baby.   Smiley
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« Reply #75 on: September 30, 2010, 04:53:50 PM »

HAPPY BIRTHDAY HOSANNA!!!

You are now four weeks old! You are already defying the odds (doctors said it was unlikely that you wuld survive one month.) We are so proud of you! You are a blessing to us, bringing peace, joy, love, and light into our home and into our lives. I look at you and see everything that Our Lord would have me become: innocent, pure, completely dependent upon God, and completely open and receptive to love. We know you are in God's hands, and that you will fulfill His purpose for your life. So many people are praying for you! I love you Hosanna Maryam!




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« Reply #76 on: September 30, 2010, 05:03:08 PM »


Happy One Month Birthday Hosanna Maryam!

May the Lord have mercy on you and your family!

What a sweetie!
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« Reply #77 on: September 30, 2010, 05:24:18 PM »

Precious peace to you, your beloved wife and your precious little girl Hosanna!  Happy Joyous Birthday!! Praise God for His life giving Spirit!

Lord have mercy. 
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« Reply #78 on: September 30, 2010, 05:31:46 PM »

Happy 4 week birthday Hosanna!
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« Reply #79 on: September 30, 2010, 05:45:59 PM »

Happy 4 week birthday! May the Lord permit us to learn of His love for us through our love for her!
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« Reply #80 on: September 30, 2010, 05:49:01 PM »

What a sweet child.   angel  Happy four week birthday! 
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« Reply #81 on: September 30, 2010, 10:40:21 PM »

Glory to God! Many Years to Hosanna Mariam and the parents!
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« Reply #82 on: September 30, 2010, 10:42:09 PM »

Happy birthday to the darling girl!
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« Reply #83 on: September 30, 2010, 11:09:36 PM »

I know that all your prayers have greatly contributed to her success thus far. Our family is deeply appreciative!


Selam
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« Reply #84 on: October 01, 2010, 02:02:48 AM »

Glory to God!

May God bless the little Hosanna Maryam! God grant her many years!

Through the prayers of the Most Holy Theotokos, St. Gebre Menfes Kidus, and all the Saints, have mercy on the little child Hosanna Maryam!
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« Reply #85 on: October 01, 2010, 03:07:12 AM »

God grant your beautiful Hosanna Maryam many years.
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« Reply #86 on: October 01, 2010, 07:46:56 AM »

God grant you many years.
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« Reply #87 on: October 01, 2010, 09:10:18 AM »

Many years!
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« Reply #88 on: October 06, 2010, 09:36:18 PM »

May the Lord continue to grant her strength, support, and, above all, the abundant love that He gives you to share with her.
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« Reply #89 on: December 12, 2010, 01:12:02 AM »

Brother in Christ, Gebre and Family:

Having eight children (one of whom has Down Syndrome), we know a little of what you are going through and feeling.  But, thanks be to God, you have the Christian answer.  Keep reminding yourself and your wife about these things and continue to pray to see God's powerful grace in this entire situation.  If you do this you, your wife and Hosanna Mariyam will all be triuphant no matter what the earthly results.  Please know that I and my family will join the others who are praying for you and your precious little girl.

Trusting in Christ's Inextinguishable Light,
Sub-Deacon Ghazaros
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