I am engaged in setting up a special needs trust, a non profit and doing a fundraiser for my daughter's condition-plus tending my daughter herself. Today brought a new battle for her AAC device, a high tech glorified tablet computer that speaks for her using her eye gaze, as well as the new specialized seating she needs for when she seizes. I am fighting, but I am weary and dh is as well.
Need prayer to continue on unabated despite constant literal headaches, and for dh not to tire in all he does for his family. Struggling to believe God cares about any of this lately.