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ATLANTA -- A fundraiser will be held Thursday night for a 2-year-old Atlanta girl who has a genetic condition so rare, most doctors have only heard about it.The condition is so bad for Ellie Tavani that even hugs from her parents cause excruciating pain.The condition is called epidermolysis bullosa, which causes severe blistering at even the lightest touch, doctors said.To make things worse, doctors said there is no treatment or cure for Ellie’s condition.
Lord, have mercy on the work of Thy Hands!! This is so very sad!
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