I've been diagnosed with the blood test and an endoscopy. and I do notice more and more people go gluten free, but never have the test results to back it up. These people go on and off the diet, which makes other people think that people with Celiac can go on and off the diet, without anything bad happening. So it hurts those people that have the disease. It's extremely frustrating. Celiac is not a joke, and not something that can be taken lightly. Also, a lot of Atkins people think they can eat gluten free, and it means the same thing. Even after you explain it, it takes them a while to understand.
There was an article about a chef that would tell people their food was gluten free, but it wasn't, because he didn't believe Celiac existed. He said that he never saw a reaction in his restaurant. Reality is, their reactions came that night, and it's not fun. People just don't take it seriously.
As an adult with Celiac, I can tell you, Eucharist is hard. Going through all of these feelings is very very hard, I can't imagine what it must be like for a child.
I am praying for you.
Then there are some Celiacs who do not want to accept the fact that they have Celiac disease. They go off and on the diet, but never stay gluten-free. Furthermore, it is more convenient for them to buy the lie that it is all in their heads, and then go and have pizza and Big Macs with their friends, so they take psychotic drugs and pain relievers to dull the symptoms.